The Precious Body

The Precious Body

Last week Finley (my son, six years old) let me know that a girl in his class laughed at him for being short. Quite literally that simple. He said, “She just said, ‘You’re short! HAHA!’”.

Finley will always be short. Osteogenesis Imperfecta is a form of dwarfism. And while he may get to 5 feet tall, that …Continue Reading

Loving People at Work

Loving People at Work

It was about five years ago when I was getting ready to take Finley, my son, to his first leg-rodding surgery in Omaha, Nebraska. He had just turned one and his legs were finally large enough to handle the procedure. I had put my PTO request in at work. It was a busy time in …Continue Reading

What I Love About Wheelchairs

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{Finley at Wheelchair Tennis clinic in Portland, Oregon. The chair allows him to play a sport! HOLLA!}

I will never forget the first time I pondered the idea of my …Continue Reading

Responsibility & Disability

“I want to live in a world where we don’t have such low expectations of disabled people that we are congratulated for getting out of bed and remembering our own names in the morning. I want to live in a world where we value genuine achievement for disabled people.” – Stella Young, Disability Advocate

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Dear Parents of Disabled Kids – Let’s Start Forgiving More

Last year my son Finley and I had a frustrating interaction with a woman at our local pool. He was in his wheelchair and her daughter was pointing and kid-whispering (you know – talking freaking …Continue Reading

Celebrating OI! A Year of Reflection

Celebrating OI! A Year of Reflection

At the end of each year we mark the highs, the accomplishments, and the good times in a number of ways. From Facebook “top 10” lists to jars filled with memories of the year. Reflecting is a way to pack up these four seasons and move on. For families with disabilities, this is not …Continue Reading